Thursday, December 19, 2013

An Altered Mind leads to An Altered View

Hello friends… once again I find my self telling you how sorry I am that it took me so long to write a post.  Rehab Hospitals really wear you out, especially when they expect you to do therapy so many times a day (geez, it is like they expect me to learn this stuff so I can go home and live a successful life!)

Anyway, this post is not from me.  It is from a sweet medical student that I have known for nearly 3 years.  She is a 3rd year Med student here at UT Southwestern Medical Center and she is in the stage of her learning where they do rounds in the University hospitals, clinics, VA, Parkland, etc…  She recently wrote a "Reflection Essay", which is a requirement for the students upon finishing rounds for a particular specialty.  For this essay she was on Neurology rounds at St. Paul Hospital.  I am sure you all see where I am going with this.  So without further comment from me I am going to let Laurie speak (I have left off her last name for her privacy).


Laurie
November 11, 2013
Neurology Reflection Essay

The day before I finished my two week rotation at St. Paul, I was assigned a patient with one of the scariest HPI’s I had heard in a long time: she was a woman who had had an aortic dissection and subsequent rupture, had coded, underwent emergency endovascular repair, and later had developed altered mental status, which is why we had been consulted. Her primary team thought she might have had a stroke, and my resident explained that based on the history alone, he thought this was likely. He gave me her last name and room number and I went off to see her, noting incidentally that her last name was the same as someone else’s that I knew.

I walked up to her room in the ICU, saw her lying in bed through the sliding glass doors and reeled backwards. She wasn’t a generic patient who shared a last name with my friend; the patient was my friend, and she looked every bit as terrible as my resident had promised she would. I was frozen standing outside her room, my brain jammed, unable to process this situation. I turned to my teammates who had come down to see her with me and kept repeating, “I know her, I know her!” over and over. It was several seconds before I was able to pull myself together and walk into her room.
She looked awful. She was drowsy and would only occasionally follow commands, fighting feebly against her restraints. I fumbled through my neurologic exam and hurried out. To my immense relief, her family convinced the primary team to give her a sedation holiday later that day and it was discovered that she had not, in fact, had a stroke, and once off the sedatives her mental status returned to her normal baseline.

It wasn’t until I went back to visit her days later simply as a friend and not as a member of her healthcare team that I realized how foolish it had been for me to accept her as a patient at all. Apart from the fact that I nearly had a meltdown in the middle of the ICU, I hadn’t even come close to doing a complete neurologic history and physical on her: despite the patently obvious finding that she had lost most of her sensation and motor function in her legs, I didn’t ask about bowel or bladder control, I didn’t check rectal tone or perianal sensation—I didn’t even get a pinprick sensory level on her because I didn’t want to have to lift her gown.

In reflecting on this experience, I discovered something that surprised me: I had always thought that the primary reason treating family and friends is discouraged in medicine was because, in their zeal to go above and beyond and do everything for their loved one, physicians might end up doing something not truly in the patient’s best interests. That wasn’t at all my experience, which in fact had been quite the opposite—I had delivered unquestionably subpar care in my efforts to not embarrass my friend.
As it turns out, this is apparently more often than not the case. Dr. Scott Kirby, medical director of the North Carolina Medical Board, is quoted in an article on treating family and friends, remarking, “Physicians provide care to family members [and friends]…that is generally below standards. They cut corners. They don't do things they would normally do in treating a patient” (1). In the American College of Physician’s Ethics Manual, the authors elaborate: “The patient may be at risk of receiving inferior care from the physician. Problems may include effects on clinical objectivity, inadequate history-taking or physical examination, overtesting, inappropriate prescribing, incomplete counseling on sensitive issues, or failure to keep appropriate medical records” (2).

That doesn’t mean it doesn’t happen, of course. In a landmark 1991 study published in The New England Journal of Medicine, authors found that 99% of 465 survey respondents had been asked for medical advice by a family member, and the vast majority of them had provided it. In fact, their level of involvement in their family member’s care ranged from performing a physical exam (72%) and prescribing medication (83%) to acting as their attending physician in a hospital (15%) and even performing elective (9%) or emergency surgery (4%) (3). 
 
Though my experience was perhaps rather dramatic, it did highlight for me the perils of participating in the care of a patient whom I knew personally. Already I have been asked countless times for medical advice both from family and friends, and I will continue my current party line: “That is an excellent question that I encourage you to discuss with your doctor.” More to the point, though, if in the future I should come across people I know personally as patients, I plan to respectfully decline to care for them in an effort to preserve the highest standards of care for the patient.


(I have left off the references to this essay because they are not pertinent to the story!!)

Laurie is a sweet soul and a brave young woman.  I have spoken with her and seen her several times since the incident.  She is going to be a great doctor and I am proud of her.  She told me she was afraid that she couldn't handle surprises like the shock she got from seeing me in the bed in the Cardio Vascular ICU unit.  I told her that she was wrong, that this incident has made her a better doctor because she learned that each patient behind the glass is not just a patient but a person.  That is a lesson all doctors in training need to learn.

With Much Love,

Sonnie

Tuesday, December 10, 2013

T.G.I.F - Thank GOD it's Friday...

Hey there… I missed you and I apologize for the delay in posting.  My mountain decided to have some serious valleys come along and try to trip me up.  But that story does not fit into this time line.  So… it's finally Friday and I am fully Sonnie… what an amazing, wonderful, miraculous occurrence.  Who would have thought that the outcome would have been so spectacular.  That I would be fully and completely me and have no damage to my brain at all.  In fact, the MRI showed that my brain is perfect.  Hey you out there… be nice… I didn't say it, the doctor did!!  So let's move on to that whole story, shall we??

Friday… ah, the day that most working folk look forward to… the day that, once over, shepherds in the weekend.  I was told that Friday morning I would have my fourth and final surgery and then have an MRI while I was still out from my surgery.  I thought this was odd as I had endured 3 previous MRI's in my past and didn't have any issues with them, they are loud, but, no big deal.  The morning was actually starting to move along and no surgery.  We were starting to wonder what was going on.  Well the surgical team finally came in and proceeded to tell me that my surgery would be done in the afternoon instead.  The MRI was going to be done first.  Oh, panic started to set in just then.  The big question and worry for me was "Are you going to put a breathing tube in my throat??"  Oh how I hate those things, I was actually tethered to the bed for my want to pull out my tube in the ICU during my dark week.  Much to my relief, the answer was no, if I could endure the procedure, they would let me go in without putting me under.  They asked if I could lie still for the whole procedure, yes was my answer.  "Are you sure??"  "Ummm, yes, I have had 3 before.  Two on my brain and 1 on my leg, no problem."  See, at this point I still didn't know that I had tried to beat up the MRI Tech… geez.  Needless to say, I was slightly embarrassed when I found out that little tidbit of information.   At any rate, off I went for my MRI armed with my ICU nurse, who thankfully had lots of pain meds for my back so that I could endure the 2 hour test.  I made it through without so much as a muscle twitch, well, close enough for government work as my mom used to say.  Thanks to the pain meds and the encouragement from my nurse, Suzanne and the techs the MRI wasn't all that bad.  Funny thing was that my nurse and Suzanne had to convince the techs that I was the same person they saw on Wednesday, I guess I was much nicer on Friday than I was on Wednesday… at least I didn't take a swing at anyone.  Friday was getting better by the minute.

Back to my room in ICU.  We were taken by my sweet transport tech Gordon…Flash, as we liked to call him.  What a fun guy and such a sweetheart.  Flirted with me shamelessly, which was so sweet considering I know what I looked like after a week of ups and downs, highs and lows.  I was a mess and I know it.  He was funny and we enjoyed his jokes, he made the day that much brighter.  He actually told me that I was his favorite patient of the day.  Thank God for kind people when things have been rough.  No sooner than we got back from the imaging room to my ICU room and up pops the surgery team to get me for my final surgery.  Whisked off to surgery to remove a large blood clot from my left chest and insert yet more drainage tubes to get rid of fluid pooling around my heart and lungs.  I came out of that surgery with flying colors and was awake and alert very shortly after the surgery, much to the surprise of Wes (my "Big Boss") who had come to see me following the procedure.  He was shocked and amazed that I was so peppy and happy right after my surgery.  He kept asking me over and over again if I really had just come out of surgery… yes, of course I did, just now, I said with a large grin on my face.  I think he thought I was crazy and amazing all at the same time.

He is not far from the mark with that thought…

Be good to one another, you never know when someone has been through something rough.  Until my next post…

With Much Love,

Sonnie

Sunday, December 1, 2013

What are you going to be for Halloween?? A sick girl in a hospital bed… what a great costume idea, or not!!

Thursday… Halloween, my costume had been the best up until Thursday morning, no one recognized me!  Then came a breakthrough.  A change in my behavior and personality.  It was as if the doctors were now dealing with a child.  When ever they would ask me questions the answer was always wrong and always very interesting.  Where are you?… New York.  What year is it?… 1980 something.  What is your name?… Sontana Cumberworth, oh… wait a minute… that one is correct, if I was still in the 80's anyway.  What day is today?  Jay helped me cheat on that one… he told me it was Halloween and I should make a Halloween face.  Apparently I thought that was a fantastic idea and so I made a very crazy face every time the doctors asked me what day it was.  As the day progressed I was actually getting some of the questions correct.  Or at least partially correct.  How many children do you have and what are their names?… 4 children, Nicholas, Parker, Nicholas and uuuhhh… see… partially correct.  Thank goodness I really only have 2 kids, but they are great kids and I am blessed.

Day turns to evening and the butterfly emerges from her crysalis.  Once again I defied the odds, amazed the doctors and returned from the brink.  I was now closer to myself then I had been since Tuesday morning.  What is your name?… Sonnie Hoots.  What year is it?… 2013.  What day is it?… Halloween, but don't ask me the date because I don't know.  Count backwards from 100 in increments of seven… 100…93… oh man, that is so not fair.  I am a math atheist, I do not believe in the existence of math.

Needless to say, the atmosphere that surrounded me changed for the better during that day.  The doctors and nurses were finally getting a glimpse of who I really am, not the crazy, violent or vacant girl, but the real me.  I think that everyone was just glad to hear me be myself again.  The amazing thing to everyone was that I was actually me, the same crazy, funny girl I have always been, no real neurological change.  What a day, a day to celebrate, a truly joyful day.  I got to talk to my sons and all my visitors, friends and family alike.

What happened that evening as I came to myself and actually became coherent is simply amazing to me.  See… when I finally was able to comprehend what was going on around me I wasn't upset that I couldn't move my legs or feel anything below my bellybutton.  I was paralyzed, and it didn't bother me.  Apparently as I was changing throughout the day and the drugs were going out of my system the doctors asked me several times if I could feel anything in my legs or if I could move them.  Suzanne said at one point the recognition of what happened and why the doctors were asking me that spread across my face.  I understood… really understood what the outcome of my condition meant.  When I "woke" so to speak, I already knew that I had become a paraplegic and for some reason I had already come to terms with it in my mind.  Hmmmm… that is a story for another day friends,

Until then, Friday is coming…

With Much Love,

Sonnie